A key component of GlobalSkin's mission is to build connections and opportunities for collaboration within the dermatology community. Bringing the patient perspective to the forefront is top of mind for GlobalSkin's Leadership Team and Board of Directors. As part of GlobalSkin's reach and expertise, representatives have been invited to sit on several key committees, working groups and task forces.
GlobalSkin's Dermatology-Focused Collaborations
GlobalSkin maintains a multifaceted collaboration and partnership with the ), working together across several key initiatives. Through a Memorandum of Understanding, the two organizations collaborate on strategic efforts that align their missions to elevate skin health worldwide. GlobalSkin is an active member of the Patient Organization Working Group, contributing advisory support to ensure that patient perspectives are reflected in ILDS’s work. Additionally, GlobalSkin participates in several ILDS committees, including the WCD Scientific Program Committee and the World Skin Summit Planning Committee, helping to bring the patient perspective to these dermatology events. GlobalSkin also promotes the ILDS’ World Skin Health Day initiative. Together we have advocated to the World Health Organization to elevate the prioritization of skin conditions in health policy, with a major milestone achieved with the adoption of the WHA Skin Diseases Resolution in May 2025. Detailed ILDS link
GlobalSkin collaborates closely with the through multiple engagement streams. Since 2018, we have co-organized a Special Interest Session as part of the scientific program of the EADV Congress. As a member of the Patient Advocacy Taskforce, GlobalSkin contributes to strategic discussions and planning on patient-centric activities and education for EADV Members, ensuring that the patient perspective is considered and showcased. In addition, GlobalSkin is an Ambassadorsupporting the mission of the Advocacy Task Force, aimed at strengthening the role of patient voices in dermatological advocacy across Europe. GlobalSkin has been a signatory of several EADV policy statements and initiatives. Detailed EADV link
World Atopic Eczema Day (September 14) was launched in 2018 to raise awareness about this condition, its burdens and the impact on people living with atopic eczema along with their families and caregivers. This initiative, co-founded and coordinated by GlobalSkin and the , raises awareness globally and in Europe. Each year we collaborate on the development a Campaign Toolkit, which includes key messages, graphics and other useful resources. These tools are shared with ourpatient organization members and other stakeholders and are available on our websites leading towards a united awareness day. Learn more about this year's World Atopic Eczema Day Campaign.
GlobalSkin collaborates with the Global Atopic Dermatitis Atlas (GADA) by serving on the advisory board for the Atopic Dermatitis Atlas initiative. In this role, GlobalSkin brings the patient voice to the forefront, so as to ensure that the data, insights, and priorities reflected in the atlas are inclusive of real-world patient experiences.
GlobalSkin collaborates with the through a co-creative partnership focused on amplifying patient and caregiver perspectives in pediatric dermatology research. A key element of this collaboration is the PeDRA Patient Advisory Committee (PeDRA-PAC), whose charge is to inject the priorities of patients and parents into PeDRA’s research agenda while helping identify high-priority, cross-disease studies for PeDRA investigators to pursue. GlobalSkin contributes to this committee and plays an active role in shaping collaborative outputs.
GlobalSkin sits on the which focuses on advancing global policy initiatives aimed at improving the lives of people living with psoriasis. By bringing the skin patient perspective to the table, GlobalSkin helps shape advocacy strategies and policy recommendations that support access to care, reduce stigma, and promote integrated, patient-centered approaches to managing psoriasis worldwide.
GlobalSkin is a proud member of the initiative. Through this membership, GlobalSkin contributes to IDEOM’s mission of establishing and validating standardized outcome measures that matter most to patients, clinicians, and researchers in dermatology. This collaboration ensures that patient voices are meaningfully integrated into the development of tools that assess treatment effectiveness and impact, ultimately advancing patient-centered care in dermatology.
GlobalSkin serves on the advisory board of the , a collaborative initiative aimed at advancing global understanding and awareness of vitiligo. GlobalSkin contributes patient perspectives to ensure that the lived experiences and needs of those affected by vitiligo are reflected in the data and recommendations.
GlobalSkin is a member of the ), a collective of patient advocacy organizations dedicated to improving the lives of individuals affected by skin conditions. As part of this membership, GlobalSkin collaborates with like-minded groups to raise awareness, influence research priorities, and advocate for better access to care.
GlobalSkin serves on the advisory board for . Through this role, GlobalSkin ensures that the voices and lived experiences of patients are integrated into the development of this important global resource. The role supports GHiSA’s mission to improve understanding, diagnosis, and management of Hidradenitis Suppurativa (HS) worldwide, with a strong emphasis on patient-centered data and insights.
Collaborations in Broader Health, Research, and Other Therapeutic Areas
Since 2021, GlobalSkin has partnered with the (EUPATI) to offer our Members the GlobalSkin Patient Expert Scholarship Program which is an exciting opportunity to take part in the EUPATI Patient Expert Training Programme. The Patient Expert Scholarship provides financial support to expand knowledge and understanding of medicine research and clinical trials development. This includes financial support for the completion of all online components and courses, and a stipend for travel and accommodation for an in-person training and graduation event. Completion of the Patient Expert Scholarship program and becoming a EUPATI fellow leads to more opportunities to effectively engage in meaningful discussion with health officials, take part in research and raise awareness about the importance of serious dermatological diseases and their enormous impact on daily life.
GlobalSkin was accepted into the network of eligible patients and consumers organisation in 2022. That same year, we became an observer member of the Patient and Consumer Working Party (PCWP) at the EMA. In 2024 GlobalSkin transitioned into a Full Member of the PCWP. This elevated involvement and engagement in this major European regulatory body allows the skin patient voice to be heard and allows a more significant contribution on this committee. Read more about the status .
GlobalSkin collaborates with the though initiatives aimed at strengthening the role of patients in global health diplomacy. This partnership enables joint advocacy, policy engagement, and knowledge exchange, with a focus on ensuring that dermatology and skin health are recognized as vital components of public health. By working together, GlobalSkin and the Health Diplomacy Alliance amplify the patient voice in high-level policy and diplomatic discussions and drive forward more inclusive, equitable health systems worldwide. The two organizations have worked very closely on bringing the WHA Resolution on Skin Diseases to life and also have co-hosted a side-event in Geneva.
GlobalSkin is part of the Patient Think Tank. This group provides a forum for an open exchange of ideas, information and perspectives between patient organizations and industry on topical issues impacting patients. The aim of the Think Tank is to ensure that the patient voice is heard in the development of EFPIA policy and practice and to build trust and acceptance around transparent patient-industry dialogue and multi-stakeholder collaboration.
In April 2024, GlobalSkin became a member of the , a civil society network with 300+ members in 80 countries dedicated to improving noncommunicable diseases prevention and control worldwide. We actively participated in and promoted leading up to the Fourth High-level Meeting of the UN General Assembly on the Prevention and Control of NCDs and Mental Health in September 2025.
On March 25, 2024, GlobalSkin became an associate member of , a unique alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally. GlobalSkin aims to aid in strengthening the rare skin diseases patient voice and help shape research, policies and patient services as part of this membership.
GlobalSkin is a proud member of the , a global network working to promote patient-centered healthcare worldwide. Through this membership, GlobalSkin joins a diverse community of patient organizations advocating for equitable, inclusive, and accessible health systems.
GlobalSkin is a member of the , an organization dedicated to advancing the science of health-related quality of life. Through ISOQOL, GlobalSkin gains access to leading research, methodologies, and expert networks that support the development and implementation of patient-reported outcome measures. This membership enhances GlobalSkin’s ability to champion the inclusion of patient perspectives in dermatology research and care, particularly through initiatives like GRIDD and PRIDD.
GlobalSkin is a member of , a global coalition committed to systematically embedding the patient voice across the lifecycle of medicine development. Through this membership, GlobalSkin collaborates with a diverse network of stakeholders to advance meaningful patient engagement and contribute dermatology-specific perspectives. This connection enhances GlobalSkin’s ability to advocate for patient-centered research, development, and care solutions that reflect the real-world needs and experiences of people living with skin diseases. As a member of the Remuneration and Fair Market Value (FMV) Project Committee, GlobalSkin contributes to developing transparent and fair standards for compensating patient organizations and advocates. Through the Patient Engagement Open Forum (PEOF) Conference Planning Committee, GlobalSkin helps shape a globally recognized event that fosters dialogue and innovation in patient engagement practices. GlobalSkin also sits on the (PE/PED) Patient Engagement and Patient Experience Data Committee which contributes to ensuring and understanding how PE/PED influences decision making across all stakeholders. GlobalSkin’s CEO began serving on the PFMD Board in 2024.
GlobalSkin is a member of the , aligning with its mission to accelerate rare disease research and improve diagnosis and therapy for people living with rare conditions. As a member of the IRDiRC, GlobalSkin is part of the Patient Advocates Constituent Committee bringing the perspectives of dermatology patient communities into global conversations on research priorities, policy development, and cross-sector collaboration. Tammi Shipowick, Director of Programs, was voted Vice- chair of this Committee and will serve a two-year term.
GlobalSkin is a member of the , a global platform that unites patient organizations to advocate for safe, affordable, and accessible healthcare. Being a member of the WPA enables GlobalSkin to connect with a worldwide network of patient leaders, contributing the perspectives of dermatology patients to broader health advocacy efforts.
GlobalSkin is an active member of , a global alliance advocating for rare diseases as a public health priority. This membership allows GlobalSkin to connect with a broad network of organizations advocating for the rights, recognition, and care of people living with rare diseases around the world. GlobalSkin also serves on the CGN4RD Panel of Experts, contributing dermatology patient perspectives to help shape RDI’s global strategy and ensure inclusive policies and research efforts. As a Member of RDI, GlobalSkin supported the Rare Diseases Resolution, which was adopted in May 2025, declaring rare diseases a global health priority.
GlobalSkin participates in the initiative, contributing to both committee activities and co-authored publications aimed at empow Thering patient organizations and strengthening their role within multi-stakeholder ecosystems. This collaboration, led by the Synergist, reinforces GlobalSkin’s commitment to championing patient-centricity, equity, and sustainability across healthcare systems.
GlobalSkin is a member of the , a leading voice for patient communities across Europe. Through this membership, GlobalSkin engages in advocacy, policy dialogue, and knowledge exchange with a wide network of patient organizations, ensuring that the perspectives of dermatology patients are included in European health policy discussions.
GlobalSkin is a member of, a leading rare disease advocacy organization dedicated to connecting, empowering, and inspiring the rare disease community. This membership helps GlobalSkin strengthen ties within the broader rare disease ecosystem, shares insights from the dermatology patient community, and supports collective efforts to advance research, awareness, and equitable access to care for people living with rare skin conditions.
GlobalSkin's Role at the World Health Organization
GlobalSkin is proud to be part of the , which works to strengthen dialogue, encourage collaboration, and provide recommendations to support WHO’s engagement with civil society at global, regional, and national levels. Through our involvement, we support efforts to achieve health for all, advance the WHO General Programme of Work, and contribute to progress on health-related Sustainable Development Goals (SDGs). As part of the Commission, GlobalSkin actively highlights lived experiences of people with skin diseases and helps ensure that patient-focused insights inform the Commission’s direction, workplans, and priorities. We take part in the annual General Meeting to review progress and shape future work, and engage in Working Groups to share perspectives, exchange knowledge, and collaborate on key issues.
GlobalSkin is actively engaged in , aimed at bringing together civil society organizations to help shape policies and strengthen health systems in support of universal health coverage. Through this engagement, we contribute to efforts that promote inclusive, equitable, and people-centered approaches to health, ensuring that no one is left behind. As part of CSEM, GlobalSkin helps elevate the voices of people living with skin diseases, advocating for greater attention to their needs within broader health system discussions. We play a key role in collaborative initiatives that support policy influence, strengthen accountability, and enhance coordination across civil society networks at global, regional, and national levels.